About

Mummy_Alice_Sits_With_Child_Niamh_And_Dog_On_Bench_Retts_Syndrome_Blog
 
 

Hi, I’m Alice. My nine-year-old daughter Niamh has Rett syndrome (RTT). It’s an incurable genetic disease. It’s rare. Niamh will need full-time care for her whole life.

We live, just the two of us, on a farm on Exmoor. Specialist support is limited so we do it our way. 

Follow our story to find out how we live our life.